{"id":128,"date":"2018-01-24T10:24:34","date_gmt":"2018-01-24T09:24:34","guid":{"rendered":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/?p=128"},"modified":"2018-01-24T10:24:34","modified_gmt":"2018-01-24T09:24:34","slug":"vii-jornada-interdisciplinar-en-enfermedades-raras-24-febrero-2018","status":"publish","type":"post","link":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/noticias\/sin-categoria\/vii-jornada-interdisciplinar-en-enfermedades-raras-24-febrero-2018\/","title":{"rendered":"VII Jornada Interdisciplinar en enfermedades raras &#8211; 24 Febrero 2018"},"content":{"rendered":"<p>El pr\u00f3ximo<strong> 24 de Febrero de 2018<\/strong> (S\u00e1bado), se celebra en Sant Joan d&#8217;Alacant (Alicante) la VII Jornada Interdisciplinar en enfermedades raras organizada por la <a href=\"http:\/\/ahedysia.org\/vii-jornada-interdisciplinar-en-enfermedades-raras-2018\">Asociaci\u00f3n AHEDYSIA<\/a>.<\/p>\n<p><strong>(<a href=\"http:\/\/ahedysia.org\/images\/Jornada-Interdisciplinar-AHEDYSIA-24FEB2018.pdf\">desc\u00e1rgate aqu\u00ed el D\u00edptico con el programa en formato PDF<\/a>)<\/strong><\/p>\n<p><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-131\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar.jpg\" alt=\"\" width=\"700\" height=\"939\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar.jpg 700w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-224x300.jpg 224w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-112x150.jpg 112w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-63x85.jpg 63w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-352x472.jpg 352w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-large wp-image-130\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores.jpg\" alt=\"\" width=\"700\" height=\"939\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores.jpg 700w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores-224x300.jpg 224w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores-112x150.jpg 112w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores-63x85.jpg 63w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-patrocinadores-352x472.jpg 352w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n<p><strong>LUGAR DE CELEBRACI\u00d3N:<\/strong><br \/>\n<a href=\"http:\/\/in.umh.es\/\" target=\"_blank\" rel=\"noopener\">Instituto de Neurociencias UMH<\/a><br \/>\nAvenida Santiago Ram\u00f3n y Cajal, s\/n<br \/>\n03550 Sant Joan d&#8217;Alacant, Alacant<\/p>\n<p><strong>INSCRIPCI\u00d3N:<\/strong><br \/>\n&#8211; Matr\u00edcula: 30\u20ac (incluye material, certificado de asistencia, coffee break y comida). Ingreso en la cuenta La Caixa ES39 2100 4483 11 0200017427<br \/>\n&#8211; Fecha l\u00edmite de inscripci\u00f3n: 18 de Febrero de 2018<br \/>\n&#8211; Env\u00edo del justificante de pago con el nombre y apellidos, DNI y e-mail a: <a href=\"mailto:administracion@ahedysia.org\">administracion@ahedysia.org<\/a><br \/>\nTel\u00e9fono 965 893 831 Horario: 16:00 \u2013 19:00h.<\/p>\n<p><strong>Reconocido por la Universidad Miguel Hern\u00e1ndez con<\/strong>:<br \/>\n&#8211; <strong>1 cr\u00e9dito de libre elecci\u00f3n<\/strong> a los estudiantes de Diplomaturas, Licenciaturas, Ingenierias e ingenier\u00edas Tecnicas.<br \/>\n&#8211; <strong>0,5 cr\u00e9ditos<\/strong> por competencias trasversales y profesionales a los estudiantes de titulo de Grado.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>PROGRAMA<\/strong><\/p>\n<p>&#8211; 9:00\u20139:30h. Recogida del material.<br \/>\n&#8211; 9:30\u201310:00h. Inauguraci\u00f3n. Salvador Mart\u00ednez, Catedr\u00e1tico de Anatom\u00eda, Director del Instituto de Neurociencias de Alicante, Antonia Escudero, presidenta AHEDYSIA, autoridades (pendiente de confirmaci\u00f3n).<br \/>\nModeradora: Alicia S\u00e1nchez P\u00e9rez, Vicedecana de Grado de Terapia Ocupacional. Facultad de Medicina UMH.<br \/>\n&#8211; 10:00-10:35h. \u201cEl coraz\u00f3n y el m\u00fasculo van de la mano\u201d<br \/>\nDr. Sergio C\u00e9sar D\u00edaz, Servicio de Cardiolog\u00eda Pedi\u00e1trica. Responsable de la Unidad de Miocardiopat\u00edas Familiares, Unidad de Tratamiento Integral del Paciente Neuromuscular (UTIN) Hospital Sant Joan de D\u00e9u, Barcelona.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 10:45-11:20h. \u201cS\u00edndrome de Coffin-Siris y otras alteraciones gen\u00e9ticas relacionadas con el complejo BAF\u201d<br \/>\nDr. Fernando Santos Simarro &#8211; Dr. Sixto Garc\u00eda-Mi\u00f1aur, Secci\u00f3n de Gen\u00e9tica Cl\u00ednica, Instituto de Gen\u00e9tica M\u00e9dica y Molecular (INGEMM).<br \/>\n&#8211; Coloquio<br \/>\n&#8211; 11:30. COFFEE BREAK<br \/>\n&#8211; 12:00\u201312:35h. Enfermedades raras en la infancia: aspectos \u00e9ticos. Dr. Francisco Jos\u00e9 Cambra Lasaosa, Jefe de Servicio del \u00c1rea de Cr\u00edticos. UCIP, Hospital Sant Joan de D\u00e9u, Barcelona, colaborador Institut Borja de Bio\u00e9tica. Barcelona.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 12:45\u201313:20h. Testimonio.<br \/>\n&#8211; 13:20\u201313:55h. \u201dProceso de Duelo: las p\u00e9rdidas de la vida como experiencia vital\u201d. Dr. Mariano Navarro Serer. Doctor en Psicolog\u00eda, Psic\u00f3logo Cl\u00ednico en la USM, Hospital General Universitario de Valencia.<br \/>\n&#8211; Coloquio<\/p>\n<p>&#8211; 14:15. COMIDA<\/p>\n<p>&#8211; 15:15\u201315:50h. \u201cPsicomotricidad relacional: emoci\u00f3n en movimiento\u00bb Hendrik Vaneeckhaute, psicomotricista relacional, especialista en prevenci\u00f3n y salud infantil, formador en psicomotricidad relacional y acompa\u00f1amiento emocional.<br \/>\n&#8211; Coloquio<br \/>\n&#8211; 16:00\u201316:35h. \u201dT\u00e9cnicas de reproducci\u00f3n asistida y enfermedades raras\u201d<br \/>\nDr. Javier D\u00edaz Garc\u00eda-Donato. Director Unidad de Reproducci\u00f3n Asistida Quir\u00f3n Salud Valencia.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 16:45\u201317:20 \u201cEducaci\u00f3n inclusiva: cuesti\u00f3n de derecho \u201cD. Javier Tamarit Cuadrado, Psic\u00f3logo, responsable de trasformaci\u00f3n hacia la Calidad de Vida en Plena Inclusi\u00f3n.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 17:30\u201318:05h. \u201cMejorar el sue\u00f1o es mejorar la calidad de vida, \u00bfpodemos mejorarlo? Dr. Gonzalo Pin Arboledas, Pediatra, Coordinador Unidad de Sue\u00f1o y Unidad de Pediatr\u00eda, Hospital Quir\u00f3n Salud Valencia.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 18:15\u201318:50h. \u201dExplorando nuevas perspectivas en neurorrehabilitaci\u00f3n pedi\u00e1trica: Basale Stimulacion\u201d. D\u00f1a. Irene Borja de Fuentes, Fisioterapeuta Infantil, profesora en el Departamento de Fisioterapia de la Universidad de Valencia. Grupo formadores de Basale Stimulation.<br \/>\n&#8211; Coloquio.<br \/>\n&#8211; 19:00h. CLAUSURA<\/p>\n<p><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-132\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1.jpg\" alt=\"\" width=\"700\" height=\"939\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1.jpg 700w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1-224x300.jpg 224w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1-112x150.jpg 112w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1-63x85.jpg 63w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa1-352x472.jpg 352w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n<p><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-129\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2.jpg\" alt=\"\" width=\"700\" height=\"939\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2.jpg 700w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2-224x300.jpg 224w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2-112x150.jpg 112w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2-63x85.jpg 63w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2018\/01\/20180224-Jornada-Interdisciplinar-programa2-352x472.jpg 352w\" sizes=\"auto, (max-width: 700px) 100vw, 700px\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>El pr\u00f3ximo 24 de Febrero de 2018 (S\u00e1bado), se celebra en Sant Joan d&#8217;Alacant (Alicante) la VII Jornada Interdisciplinar en enfermedades raras organizada por la Asociaci\u00f3n AHEDYSIA. (desc\u00e1rgate aqu\u00ed el D\u00edptico con el programa en formato PDF) LUGAR DE CELEBRACI\u00d3N: Instituto de Neurociencias UMH Avenida Santiago Ram\u00f3n y Cajal, s\/n 03550 Sant Joan d&#8217;Alacant, Alacant [&hellip;]<\/p>\n","protected":false},"author":815,"featured_media":133,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"be_disease":[],"be_general":[],"be_media_type":[],"class_list":["post-128","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categoria"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/128","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/users\/815"}],"replies":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/comments?post=128"}],"version-history":[{"count":1,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/128\/revisions"}],"predecessor-version":[{"id":134,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/128\/revisions\/134"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/media\/133"}],"wp:attachment":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/media?parent=128"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/categories?post=128"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/tags?post=128"},{"taxonomy":"be_disease","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_disease?post=128"},{"taxonomy":"be_general","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_general?post=128"},{"taxonomy":"be_media_type","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_media_type?post=128"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}