{"id":135,"date":"2019-01-21T13:35:42","date_gmt":"2019-01-21T12:35:42","guid":{"rendered":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/?p=135"},"modified":"2019-01-21T13:58:15","modified_gmt":"2019-01-21T12:58:15","slug":"viii-jornada-interdisciplinar-en-enfermedades-raras-23-febrero-2019","status":"publish","type":"post","link":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/noticias\/sin-categoria\/viii-jornada-interdisciplinar-en-enfermedades-raras-23-febrero-2019\/","title":{"rendered":"VIII Jornada Interdisciplinar en Enfermedades Raras &#8211; 23 Febrero 2019"},"content":{"rendered":"<p>El <strong>23 de Febrero de 2019<\/strong> (S\u00e1bado), se celebra en el\u00a0<strong><a href=\"http:\/\/in.umh.es\/\" target=\"_blank\" rel=\"noopener\">Instituto de Neurociencias UMH<\/a><\/strong> de Sant Joan d&#8217;Alacant (Alicante) la <strong>VIII Jornada Interdisciplinar en Enfermedades Raras<\/strong> organizada por la Asociaci\u00f3n AHEDYSIA.<\/p>\n<p><strong>(<a href=\"https:\/\/ahedysia.org\/images\/Jornada-Interdisciplinar-AHEDYSIA-23FEB2019.pdf\">desc\u00e1rgate aqu\u00ed el D\u00edptico con el programa en formato PDF<\/a>)<\/strong><\/p>\n<p><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-138\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-725x1024.jpg\" alt=\"\" width=\"725\" height=\"1024\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-725x1024.jpg 725w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-212x300.jpg 212w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-768x1085.jpg 768w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-35x50.jpg 35w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-106x150.jpg 106w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-60x85.jpg 60w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-334x472.jpg 334w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px-142x202.jpg 142w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Cartel-Jornada-EERR-800px.jpg 800w\" sizes=\"auto, (max-width: 725px) 100vw, 725px\" \/><\/a><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-139\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-750x1024.jpg\" alt=\"\" width=\"750\" height=\"1024\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-750x1024.jpg 750w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-220x300.jpg 220w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-768x1048.jpg 768w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-110x150.jpg 110w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-62x85.jpg 62w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio-346x472.jpg 346w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Diptico-patrocinio.jpg 800w\" sizes=\"auto, (max-width: 750px) 100vw, 750px\" \/><\/a><\/p>\n<p><strong>LUGAR DE CELEBRACI\u00d3N:<\/strong><br \/>\n<a href=\"http:\/\/in.umh.es\/\" target=\"_blank\" rel=\"noopener\">Instituto de Neurociencias UMH<\/a><br \/>\nAvenida Santiago Ram\u00f3n y Cajal, s\/n<br \/>\n03550 Sant Joan d&#8217;Alacant, Alacant<\/p>\n<p><strong>INSCRIPCI\u00d3N:<\/strong><br \/>\n&#8211; Matr\u00edcula: 35\u20ac (incluye material, certificado de asistencia, <em>coffee break<\/em> y comida). Ingreso en la cuenta La Caixa ES39 2100 4483 11 0200017427<br \/>\n&#8211; <strong>Fecha l\u00edmite de inscripci\u00f3n<\/strong>: 18 de Febrero de 2019<br \/>\n&#8211; Env\u00edo del justificante de pago con el nombre y apellidos, DNI y e-mail a: <a href=\"mailto:administracion@ahedysia.org\">administracion@ahedysia.org<\/a><br \/>\nTel\u00e9fono 638 651 666 Horario: 16:00 \u2013 19:00h.<\/p>\n<p><strong>Reconocido por la Universidad Miguel Hern\u00e1ndez con<\/strong>:<br \/>\n&#8211; <strong>0,5 cr\u00e9ditos<\/strong> <strong>por competencias trasversales y profesionales<\/strong> a los estudiantes de titulo de Grado.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>PROGRAMA<\/strong><\/p>\n<p>&#8211; <strong>9:00\u20139:30h<\/strong>.Recogida del material.<br \/>\n&#8211; <strong>9:30\u201310:00h<\/strong>. <strong>Inauguraci\u00f3n<\/strong>.<br \/>\n&#8211; <strong>10:00-10:35h.<\/strong> <strong>\u201c20 a\u00f1os Tratando con Implantes Cocleares a los Ni\u00f1os con Hipoacusia\u201d.<\/strong> Dr. Javier Cervera Escario, jefe de Servicio de Otorrinolaringologia pedi\u00e1trica del Hospital Infantil Universitario Ni\u00f1o Jes\u00fas. Madrid<br \/>\n&#8211; <strong>Coloquio<\/strong>.<br \/>\n&#8211; <strong>10:45-11:20h. \u201cS\u00edndrome de Patau, Diagnostico, Decisiones y Cuidados\u201d<\/strong> Dra. Mercedes Pineda Marfa, Neuropediatra de la Fundaci\u00f3n Sant Joan de Deu y Clinica Teknon. Barcelona<br \/>\n&#8211; <strong>Coloquio<\/strong><br \/>\n<strong>&#8211; [ 11:30. COFFEE BREAK ]<\/strong><br \/>\n&#8211; <strong>12:00\u201312:35h\u201cUtilidad de la Toxina Botul\u00ednica en el Tratamiento de la Espasticidad y otros Trastornos del Movimiento\u201d<\/strong><br \/>\nDr. Adri\u00e1n Garc\u00eda Ron, Neuropediatra del Instituto del Ni\u00f1o y el Adolescente (INA) Hospital Universitario Cl\u00ednico San Carlos. Madrid<br \/>\n&#8211;<strong> Coloquio.<\/strong><br \/>\n&#8211; <strong>12:45\u201313:20h.\u201d Paso a Paso\u201d<\/strong> Testimonio. D\u00f1a. Antonia Ruiz Cano (Ahedysia)<br \/>\n&#8211; <strong>13:20\u201313:55h. \u201cFisioterapia de la Mano Esp\u00e1stica tras Toxina Botul\u00ednica\u201d<\/strong> Dra. Roc\u00edo Palomo Carri\u00f3n, doctora en fisioterapia, fisioterapeuta en pediatr\u00eda CDIAT-APANDID. Toledo<br \/>\n&#8211; <strong>Coloquio.<\/strong><\/p>\n<p><strong>[ 14:15. COMIDA ]<\/strong><\/p>\n<p>&#8211;<strong> 15:15\u201315:50h. \u00abDistrofias Retinianas en la Edad Pedi\u00e1trica\u201d<\/strong> Dr. Jaume Catal\u00e0 Mora, Especialista en Oftalmolog\u00eda Pedi\u00e1trica, Hospital Sant Joan de D\u00e9u, Institut Oftalmol\u00f2gic del Pilar. Barcelona.<br \/>\n&#8211; <strong>Coloquio.<\/strong><br \/>\n&#8211; <strong>16:00\u201316:35h.\u201d Artefactos-Dise\u00f1o y Fabricaci\u00f3n Colectiva de Productos Tecnol\u00f3gicos de Apoyo de C\u00f3digo Abierto\u201d<\/strong> Francisco Javier Esclapes, y Mercedes Llorens Nicolau, doctores en ingenier\u00eda, especialistas en ingenier\u00eda de producto e innovaci\u00f3n estrat\u00e9gica, Universidad de Alicante<br \/>\n&#8211; <strong>Coloquio<\/strong>.<br \/>\n&#8211; <strong>16:45\u201317:20 \u201cPapel de la Terapia Ocupacional en la Autonom\u00eda de Personas con Diversidad Funcional\u201d.<\/strong> D\u00f1a. Mar\u00eda Cristina Espinosa Sempere. Terapeuta Ocupacional especialista en Neuro-rehabilitacion, profesora del Grado de terapia ocupacional Universidad Miguel Hern\u00e1ndez. Alicante<br \/>\n&#8211; <strong>Coloquio.<\/strong><br \/>\n&#8211; <strong>17:30\u201318:05h.\u201dEl Cuento como B\u00e1lsamo del Alma\u201d<\/strong>. D\u00f1a. Miriam Diez Vera, Cuentoterapeuta y Practitioner en PNL. Alicante<br \/>\n&#8211; <strong>Coloquio.<\/strong><br \/>\n&#8211; <strong>18:15\u201318:50h.Testimonio<\/strong><br \/>\n&#8211; <strong>19:00h.CLAUSURA.<\/strong><\/p>\n<p><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-136\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-750x1024.jpg\" alt=\"\" width=\"750\" height=\"1024\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-750x1024.jpg 750w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-220x300.jpg 220w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-768x1048.jpg 768w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-110x150.jpg 110w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-62x85.jpg 62w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1-346x472.jpg 346w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag1.jpg 800w\" sizes=\"auto, (max-width: 750px) 100vw, 750px\" \/><\/a><a href=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-137\" src=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-750x1024.jpg\" alt=\"\" width=\"750\" height=\"1024\" srcset=\"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-750x1024.jpg 750w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-220x300.jpg 220w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-768x1048.jpg 768w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-37x50.jpg 37w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-110x150.jpg 110w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-62x85.jpg 62w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2-346x472.jpg 346w, https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/files\/2019\/01\/20190223-Programa-pag2.jpg 800w\" sizes=\"auto, (max-width: 750px) 100vw, 750px\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>El 23 de Febrero de 2019 (S\u00e1bado), se celebra en el\u00a0Instituto de Neurociencias UMH de Sant Joan d&#8217;Alacant (Alicante) la VIII Jornada Interdisciplinar en Enfermedades Raras organizada por la Asociaci\u00f3n AHEDYSIA. (desc\u00e1rgate aqu\u00ed el D\u00edptico con el programa en formato PDF) LUGAR DE CELEBRACI\u00d3N: Instituto de Neurociencias UMH Avenida Santiago Ram\u00f3n y Cajal, s\/n 03550 [&hellip;]<\/p>\n","protected":false},"author":815,"featured_media":140,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"be_disease":[593],"be_general":[],"be_media_type":[],"class_list":["post-135","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categoria","be_disease-enfermedades-raras"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/135","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/users\/815"}],"replies":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/comments?post=135"}],"version-history":[{"count":2,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/135\/revisions"}],"predecessor-version":[{"id":143,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/posts\/135\/revisions\/143"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/media\/140"}],"wp:attachment":[{"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/media?parent=135"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/categories?post=135"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/tags?post=135"},{"taxonomy":"be_disease","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_disease?post=135"},{"taxonomy":"be_general","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_general?post=135"},{"taxonomy":"be_media_type","embeddable":true,"href":"https:\/\/www.somospacientes.com\/a-h-e-d-y-s-i-a\/wp-json\/wp\/v2\/be_media_type?post=135"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}